Vara Machalina is only 3 years old. All this time, the girl has been living with a rare genetic disease that turned her childhood into a real hell. The baby can not only run, but also walk.
At birth, Barbara was diagnosed with osteogenesis imperfecta.
People with this gene mutation are called "crystal" or "glass". Their bones are destroyed from the inside and even a minor impact can lead to fractures.
Due to numerous fractures, and Varya had 15 of them after birth and one more in the womb, the girl's legs were deformed. She cannot stand, only crawls.
- Recently Varya was crawling, sat up abruptly and shouted that she was in pain. It turned out that she broke two hips at once. Daughters are helped by IVs, which block the destruction of bones. Every 3-4 months Varya needs to receive a "miracle drug" …
We have already completed 16 courses of therapy. Treatment is also paid and expensive. Now the bone density has reached the age norm. Varyushin's bones are ready for surgery, it is desirable to carry it out soon! - said the mother of the baby Daria.
The operation carried out by specialists from Croatia will help the girl to develop fully. They implant telescopic pins into the bones, which grow with the child. This will help to straighten deformed legs, and IV courses will allow Varya to live a normal life.
In Russia, such operations are not performed: we have plates or heating elements implanted, which destroy the bone and must be changed periodically, since they do not grow with the baby.
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The cost of the operation in Croatia is 40,525 euros. At the moment, only 650 thousand rubles have been collected.
If you want to help Varya, you can find out how to help her by contacting the girl's mother by phone 8-961-663-35-59.
