24-year-old Anali Gibi learned about her daughter's illness while still pregnant. Doctors warned that the child's brain will develop outside the skull and it is extremely unlikely that the baby will survive.
Now little Rose is only 6 weeks old, but the doctors cannot do anything and sent her home so that she could die in the circle of loved ones.
In the 20th week of pregnancy, a child of a Northern Irish woman was diagnosed with encephalocele. It is a rare disease where the brain develops outside the skull. 24-year-old Anali Gibi was immediately told that her daughter was unlikely to survive childbirth.
Anali says that during the entire pregnancy she could not think of anything else except that her child would be sick. She didn't buy any baby things.
- I didn't buy anything because I didn't see any point in it. I didn’t deal with all the sweet worries of pregnant women. When I was told that my child might not survive, I was heartbroken.
Now May Rose is 6 weeks old, but it will still not be possible to save the girl, doctors say. They sent her back home so that Rose could "die in peace" with her loved ones. However, the mother of the child is not going to give up. There have been cases when children with the same disease have lived for more than 10 years. For example, in Boston there is a 25-year-old man with encephalocele.
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Anali is collecting donations to send her baby to Boston, where they deal with similar diagnoses. The girl says that Rose is the calmest child. She eats well and sleeps at night, and when she hears her name, she amusingly shakes her little arms and legs.
Maria Palamarchuk